Since I moved out of my parent’s house in December, I’ve been putting about 4-6 hours a day towards studying for my project management certification. My application was approved to take the exam last week, I selected 2/24 as my exam date, and took my first full 200 question 4 hour practice exam a few days ago and scored 79.5%. I have to say that studying for this exam has been really great for my recovery because I was having such a hard time focusing and retaining information coming out of surgery. A lot of it had to do with the chemo meds still in me and from laying in bed all day watching tv and playing video games.
I’m really proud of myself that I was able to resharpen my mind and be able to sit for a practice exam and get really close to hitting my target of 80% on the real exam. I plan on taking at least 4 more practice tests in the next few weeks following my exam date as well as studying my weak areas.
This post has been way super long overdue because I’ve been taking up my free time with studying but it’s been on my mind since I first got sick. I wanted to not only educate people about the physical aspects of going through cancer treatment but also the financial aspects of it as well.
I first want to say that when I was diagnosed with bronchitis at the end of April, the doctor said he was on the fence about ordering an Xray just in case it could be pneumonia. Taking his word for it and not knowing that an Xray cost about $50 I went along with his advice and chose not to do it. Coulda/Woulda/Shoulda doesn’t really help after the fact but I did think about how things would have been different if I caught Derek a month and a half earlier than I did.
I spent about 3 hours yesterday pulling 155 Explanation of Benefits docs from Healthpartners and manually entering the data into excel because the documents were not in a copy-able format.
I have everything broken out into categories so let’s start from the top:
My urgent care visit when I was first diagnosed with a tumor was $460.30
All the MRIs, CT scans, ultrasounds was $12,078.32
Xray services which I assume include radiologist fees were $7,464.46
I was admitted to the emergency room three times. The day I was diagnosed with a tumor, the first time I got bleomycin, and the second time I got bleomycin. These were $3,133.41
I spent a total of 12 days in the hospital which cost $141,962.50
All doctor visits both in office and at the hospital was $45,293.3
Lab services to run tests those samples the blood suckers took from me $7,453.02
Chemotherapy meds, Neulasta, all the pain killers I got after surgery, etc. $74,457.07
Outpatient Hospital, not sure what this cost is (maybe my physical therapy post surgery?) cost $2,243.4
The surgery related equipment to put in, clean, and take out my PICC line was $8,712.34
All of this adds up to a grand total of $303,258.07
I want to break down the total costs into chunks to better tell the story.
It cost $1,836.40 the first day I found out I had a tumor.
The biopsy to test the tumor to see if it was cancer cost $7,324.65.
The office visit for them to tell me that I had cancer cost $401.
When I first visited the Mayo Clinic, was admitted right away, and instructed to begin chemo therapy for 6 days was $62,214.11.
After my first high fever from getting a shot of bleomycin, I went to the hospital and was admitted for 6 days cost $30,522.32.
One shot of bleomycin was $841.65, while the total cost of my visit to Rochester for my one day per week visit was about $984.30 per week.
When I needed to go to Mayo for the full 5 day session of chemo, the total was $23,195.50. Just the chemo meds cost $1,821.87 per day. This doesn’t count the cost of me sitting in the chair or the nurses administering the meds either.
The entire chest surgery experience was $121,580.32. The actual day of surgery cost $119,421.50.
Out of the total $303,258.07 that Derek incurred to the medical system, I only had to pay $2,950.73 out of pocket. That is a 99.02% discount. Pretty good deal right?
Unfortunately, because I was 5 weeks short of being included in my company’s FMLA policy since I was only employed there for 6 months, I wasn’t able to continue paying the same rate for health insurance as I was before. My monthly health insurance went from $125 to $450 a month after switching to COBRA which is quite expensive. Total health insurance costs were $3,207.26.
There was a point where I needed to fight Mayo and Healthpartners with my surgery costs. When I checked in for my surgery, the front desk person asked if I wanted a shared room or a private room for $95 a night. This expense would not be covered by insurance. I requested the private room and a month later I received a bill from Mayo for $1700.
I called to get an explanation because my private room should have only been about $475. They said that the additional $1,200 was “post surgery room” costs. This didn’t make sense to me, if I had a shared room, would they just put me in the hallway after surgery?
This resulted in having to call Healthpartners and Mayo clinic back and forth, writing a formal letter for them to investigate, and then calling to object to their objection for my investigation.
Finally they admitted to categorizing the money incorrectly and my bill was adjusted. While I have the time and sound of mind to navigate through all this bureaucracy, I can’t help but think about all the people that aren’t able to advocate for themselves like the elderly and are taken advantage of.
I absolutely count the value of being alive priceless but considering medical expenses are not transparent at all, I think this gives a lot of perspective of what it cost for me to get healthy again in the course of 6 months. I also cannot imagine what life must be like for those who can’t afford health insurance. Did you know that 1 in 3 Gofundme accounts are for medical costs and that people are raising $650 Million on GoFundMe Each Year to cover medical costs?
It is extremely humbling that God lined everything up financially for me prior to being sick. With my multiple disability policies I just so happened to apply for 3 months prior to getting sick, I was able to pay off all medical bills, insurance, and living expenses. I consider myself very lucky that I was able to save up some money too so that I could take an additional 2 months to have extra time to recover and have “me” time before going back to work. I seriously can’t stress enough the importance of good budgeting and money management.
Seriously, life is great right now. I couldn’t be happier to feel “normal” again. While I still have to be careful of overexerting myself, it’s just really nice to not have to go to the hospital every week. I CAN EAT SALAD WHENEVER I WANT!!!
I do have to go down to Mayo once every 3 months for checkups. My dad and I are trying to synchronize our appoints to minimize the driving.
Now that my hair is growing longer after 4 months of not doing chemo, I noticed that it’s starting to get wavy and it’s much more plentiful than before. I noticed that I have much less facial hair and it’s growing at a slower rate than before. I’m also getting a lot of acne breakouts as if I were 14 again. I made an appointment with a dermatologist for today. When I called and explained my patient history, the receptionist said that they do see quite a few post chemo patients so the pimples are likely a result of my cancer treatment.
Hair is growing with a slight curl
Annoying acne breakouts
Things are going great, yoga has been helping me improve my breathing and strength. I tried to do a pullup 2 weeks ago. I did one and heard audible cracks all the way down my rib cage and I pulled my lat muscle. My dad shook his head and said “You’re an idiot, what would have happened if your incision opened up and you’re bleeding all over the gym?” My response was ¯\_(ツ)_/¯
Oh yah, it was also my 31st birthday earlier this month. Happy birthday to me! I hope 31 ends up being a much better year than 30 was.
I am soooo happy you are coming back to work in 11 days! We have missed you and I am thrilled to have my lunch buddy back.
I come back on the 18th, pretty soon though!
Praise God! It’s so good to see you doing so well. I reached out to you early in your diagnosis, my 29 year old son had liver cancer, and your insight was so helpful as he was a private and quiet guy. He went on to be with his heavenly father Feb 14. Although the cancer took his body, we know that his spirit will live on forever in heaven with his savior, Jesus!! the cancer is dead, but he lives on in victory!
I will continue to follow your updates and I’ll be praying along the way. Live each day like it’s your last and love those around you well. Life is short, experience every moment!
I’m so sorry for your loss, my heart breaks for your family. Thank you so much for your continued support, it really means a lot to me that my story resonated with so many people.